My Child is Dying http://www.mychildisdying.com A place for parents and siblings to express thier thoughts and emotions about the heartbreaking death of a child. Mon, 02 Apr 2012 13:04:23 +0000 en hourly 1 http://wordpress.org/?v=3.3.1 cochlea implant speech therapy http://www.mychildisdying.com/2011/06/01/cochlea-implant-speech-therapy/ http://www.mychildisdying.com/2011/06/01/cochlea-implant-speech-therapy/#comments Wed, 01 Jun 2011 03:42:33 +0000 Wayne http://www.mychildisdying.com/2011/06/01/cochlea-implant-speech-therapy-mpg/

The difference the cochlea makes is huge – and the hearing aid, while large – is managable.

]]> http://www.mychildisdying.com/2011/06/01/cochlea-implant-speech-therapy/feed/ 0 Speech therapy after cochlea implant http://www.mychildisdying.com/2011/06/01/speech-therapy-after-cochlea-implant-mpg/ http://www.mychildisdying.com/2011/06/01/speech-therapy-after-cochlea-implant-mpg/#comments Wed, 01 Jun 2011 03:42:33 +0000 Wayne http://www.mychildisdying.com/2011/06/01/speech-therapy-after-cochlea-implant-mpg/

Video showing child after cochlea implant after 2 years – great results but lots of speech therapy.

Speech therapy after cochlea implant video

]]> http://www.mychildisdying.com/2011/06/01/speech-therapy-after-cochlea-implant-mpg/feed/ 0 Cochlea inplant and speech therapy after 2 years http://www.mychildisdying.com/2011/06/01/cochlea-inplant-and-speech-therapy-after-2-years/ http://www.mychildisdying.com/2011/06/01/cochlea-inplant-and-speech-therapy-after-2-years/#comments Wed, 01 Jun 2011 03:42:33 +0000 Wayne http://www.mychildisdying.com/2011/06/01/cochlea-inplant_speech_therapy_after_-2_years-mpg/

A cochlea implant makes all the difference.

 

After speech therapy his cochlea was definitely worth it. What a great hearing aid! We have a second hand cochlea for sale if anyone is interested?

]]> http://www.mychildisdying.com/2011/06/01/cochlea-inplant-and-speech-therapy-after-2-years/feed/ 0 Cochlea implant switch on http://www.mychildisdying.com/2010/11/21/cochlea-implant-switch-on/ http://www.mychildisdying.com/2010/11/21/cochlea-implant-switch-on/#comments Sun, 21 Nov 2010 03:59:09 +0000 Wayne http://www.mychildisdying.com/?p=81 Continue reading →]]>

Luc’s implant was done a year ago. This video show the switch on – amazing – from stone deaf to hearing.

He is now 2/12 and loving every second of his hearing world. We continue with sign language training – he might lose his hearing as the Leukodystrophy progress – no signs yet though.. Check out the latest hearing aid – the new cochlea! The hearing aids, or implants, for deaf children were sponsored by reach for a dream – they got us this free hearing aid. It was a real eye opener to actually benefit – we never thought we would get the help – so thanks reach for a dream – you certainly helped our deaf kid!

]]> http://www.mychildisdying.com/2010/11/21/cochlea-implant-switch-on/feed/ 0 What A Place To Be http://www.mychildisdying.com/2010/03/05/what-a-place-to-be/ http://www.mychildisdying.com/2010/03/05/what-a-place-to-be/#comments Fri, 05 Mar 2010 16:25:20 +0000 Wayne http://mychildisdying.com/?p=40

Sue and Luc

What a place….

Nothing to be say

Nothing to do

Nothing to hope for

Nothing to ease

Nothing to comfort

Nothing….

My Child is dying

What an empty despairing place to be

Drop my head and surrender

]]> http://www.mychildisdying.com/2010/03/05/what-a-place-to-be/feed/ 0 Towards death http://www.mychildisdying.com/2010/02/21/towards-death/ http://www.mychildisdying.com/2010/02/21/towards-death/#comments Sun, 21 Feb 2010 11:06:50 +0000 Wayne http://mychildisdying.com/?p=17 Continue reading →]]>

Ignorant innocence

Bliss in childness

No knowledge of death

No knowledge of life

Just the new moment

Popping into existence

Fascination with creation

Happening now

Guiltless disdain for anything not interesting

Moving on with anticipation

Embracing the flow

Towards death

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My child is dying

Waves of sadness swell and break….

Tearing, engulfing, overwhelming.

Creeping joy is ripped by what will not be.

Now love is turned

To pain for a future nothing.

To stay now in the joy?

How – every new step is a step that cannot be finished?

To take the gift now and know it is gone tomorrow.

Beautiful boy, shining smile, so much love

Gone , for what, to what

My heart, my life is ripped with every child nuance.

]]> http://www.mychildisdying.com/2010/02/21/mychild-is-dying/feed/ 0 “Ever has it been that love knows not its own depth until the hour of separation.” Kahlil Gibran http://www.mychildisdying.com/2010/02/21/hello-world/ http://www.mychildisdying.com/2010/02/21/hello-world/#comments Sun, 21 Feb 2010 08:10:24 +0000 Wayne http://mychildisdying.com/?p=1 Continue reading →]]>
Luekodystophy - Luc at few weeks old - no visible signs. We did not know he was ill.

Brand new!

Leave us your thought and experiences.

If you have poured your heart into a poem – share it with us.

Be brave – remember to live in the now.

I am taking every moment of Luc’s life, in every detail, and loving it. All I have left is to give him love.

He is now 2 – the support and help we have got from friends, family and strangers has been great.

He is showing no signs of Leukodystrophy yet – just a happy kid.

Wayne Skews 2009

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